Fetal alcohol spectrum disorder


Posted February 9, 2018 by sagar987

Fetal Alcohol Spectrum Disorder, (FASD) is not a mental health diagnosis or a medical diagnosis but is an umbrella term used to describe a range of syndromes and disorders
 
What Exactly Is Fetal Alcohol and What Does It Have To Do With Me?




Etal Alcohol Spectrum Disorder, (FASD) isn't a mental health diagnosis or a medical diagnosis but is an umbrella term used to describe a range of syndromes and disorders that can occur in a young child whose mother consumed alcohol during pregnancy. The symptoms and effects vary in severity. Many kids share the usual effects including emotional, learning and physical issues. The common physical characteristics that can be related to FASD are facial deformities, growth deficits, liver, heart, kidney defects, eyesight and hearing problems as well as permanent brain injury. FASD is the only 100% preventable cause of mental retardation and birth defects in the United States and FASD is 100% Nominal. It's estimated that FASD impacts 40,000 infants each year. This is more than Spinal Bifida, Down Syndrome and Muscular Dystrophy combined.

Alcohol damages the areas of the brain that gives us memory, self control, coordinator and judgment. Children with FASD frequently have difficulties with learning, attention, memory, central nervous system, and problem solving skills that might have lifelong consequences. FASD is a permanent condition and impacts every facet of the child's life and the life of their family.

The psychological toll on families cannot be underestimated. For birth parents, acknowledging their child's mental retardation, birth defects, and/or neurodevelopment disorders are a consequence of maternal prenatal alcohol intake is very tricky to confront. For adoptive or foster parents, discovering that their child suffers from FASD later years of attempting to understand that his behavioral and cognitive problems contributes to feelings of isolation and frustration. As an adoptive mother I can tell you raising a child with FASD is the hardest but the most rewarding thing I have ever achieved. Andrew is currently 13 years old and is in the seventh grade. He's sweet, generous, loving and very naive. He also has exhibited many of the symptoms related to FASD because the day we brought him home at 1 week old. He cried all the time! Until he was 3 years old and on drugs he never slept for over half an hour at one time, day or night. To say life looked impossible is actually an understatement. He required constant attention and if I let him from my sight in another room for a single minute he'd destroy it. If I wasn't right beside him if he had a bowel movement in his diaper he'd take off it and smear feces all over the walls, carpets and bed. We had to put a lock on the fridge because he would climb out of his crib at the middle of night and dump everything out of the refrigerator smearing it in the carpeting, walls, and beds. For years we knew that there were serious difficulties, but no one could help us. All the professionals stated that his behaviours were out of their expertise. We moved from Doctor to Doctor, counsel to counselor and hunted everywhere for answers for our family. By age three, he was thrown out of every daycare in our area, went through a minimum of 30 babysitters, and could not remain in the nursery at Church. He was very violent toward everybody; nevertheless most of his rages were taken out on me. He'd bite me, hit me and throw things at me. He would put holes in the walls, walls, threw rocks at us, as well as the cars and was essentially never pleased. When he started college a whole new nightmare started. The fourth day of school he'd thrown toys, supplies and destroyed the classroom than conducted out of the area causing the teacher to have to leave other students to chase my 4 year-old. He was moved to an emotionally disabled course where they had experience with other kids like him.

From the time he was 5 he had so many diagnoses I lost count, but not one of them actually clarified the severity of his behaviours. We had tried 21 distinct drugs and attempted at least 4 unique kinds of treatment. We began researching the net and found a couple of websites about FASD and found that there were several places in the USA that specialized in FASD. Andrew and I packed up, leaving my husband along with other two children at home and went in search of a diagnosis. We moved to Baltimore, MD and saw a FASD pro that gave him a precise diagnosis of Fetal Alcohol Syndrome. While we finally had a diagnosis nobody seemed able to help us get his behavior in check and his behaviour was getting worse. At that time, he had been on 7 drugs however none were effective. We went back on the internet searching and studying about FASD and discovered a "severe" conduct practice, The Marcus Institute, in Atlanta GA.. They observed his behaviors and they asked if we would be amenable to coming to Atlanta to endure a few months so he can attend to the practice. It was their observation that his behaviors were something which would never get better without intense intervention. At this point we had no choice; he had been becoming larger, stronger and more damaging everyday. After fighting insurance issues, Andrew and I moved to Atlanta where he failed treatment, training and testing for eight weeks.


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Last Updated February 9, 2018